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Tuesday 21 May 2013
You are here: Home Blog Articles Being Prepared and Sticking to the Plan
Being Prepared and Sticking to the Plan PDF Print E-mail
Written by Avril   
Wednesday, 06 January 2010

You would think I should know by now that if I tell Stephen we are doing something in so far as I can, I should stick to the plan. And if I need to change, I need a picture to let him know the new activity. I know I need to prepare and plan and yet sometimes I forget and pay the price.

Yesterday Stephen and I were going to pick up Michael and Rachel from the train station (they had been on a trip to Dublin to s ee the pantomime Robin Hood with their grandparents, pantomime was excellent!).

Stephen was excited to go the train station, he loves trains and even though Michael and Rachel were only away for one night, he missed them. We got to the train station early so I decided to pop into the supermarket and get milk and bread. However I just decided to do it on impulse and it was not part of Stephen’s plan. We got the bits in the basket and then had to wait in the queue. Stephen thought I had forgotten about going to the train and went ballistic (shouting and hitting) with me. I had to abandon the shopping.
Most days I’m fine but sometimes Stephen’s ‘special needs’ (we don’t have a diagnosis) get me. I was upset, all I wanted was to get some bread and milk and I couldn’t. Sometimes I get tired of constantly have to plan, prepare, have a picture, watching for triggers…a baby started crying while we were standing in the queue, maybe that contributed to Stephen’s outburst.

There I’ve said it, it’s hard.
Some days I need to sit on my ‘pity pot’. And then I have to kick myself off it! Anyway onwards we go, learn the lesson and move on.

Best wishes as always,
Avril
 

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About Me

I’m Avril, married to Robert and I’m Mum to 3 kids, Stephen, Michael and Rachel. Stephen has special needs (he has a rare chromosomal disorder). We can see he has lots in common with children on the autistic spectrum and children with down syndrome. As well being a Mum, I’m an advocate/lobbyist for those with disabilities. I feel strongly about the importance of including Stephen is as many everyday activities and I have created the Off We Go! series of books to help Stephen and kids like him manage with everyday events.

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