| What my journey has taught me so far |
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| Written by Avril |
| Saturday, 16 June 2012 |
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I was asked recently by a grandmother whose new grandchild was diagnosed with a chromosomal disorder, what advice I could give her and her family. She was asking me because my 14 year old Stephen has a rare chromosomal disorder. This got me thinking….as I look back now on my journey of being a parent of a child with a disability and if I could have talked to myself all those years ago, what would I have said? Here is what came into my head:
Best wishes as always,
Avril
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I’m Avril, married to Robert and I’m Mum to 3 kids, Stephen, Michael and Rachel. Stephen has special needs (he has a rare chromosomal disorder). We can see he has lots in common with children on the autistic spectrum and children with down syndrome. As well being a Mum, I’m an advocate/lobbyist for those with disabilities. I feel strongly about the importance of including Stephen is as many everyday activities and I have created the Off We Go! series of books to help Stephen and kids like him manage with everyday events.
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